Unfinished Business

Melinda and Ivy have enjoyed the sounds of central coast 60's style rockers "Unfinished Business" for a couple years now. They have a reputation for playing tunes from that era that get people out on the dancefloor, which is certainly something those two ladies love doing. Last year we went to their new years eve bash at St. Patrick's school and we'll be back again, as the guys were nice enough to give Ivy, Melinda and Frank free tickets this year! In fact they've been concerned for Ivy since she was at French. They've sent a couple shirts, CD's and a DVD while she was in the hospital. Thanks Fellas!
So if you'd like to party with the Alvarado's on New Years Eve go here. I think they still have tickets available.

Red: The New Blue

Ivy changed it up a bit. She's abandoned her trademark color, but we think it looks great. Grandma likes it too, but isn't ready convert her solidarity streak to red just yet.

The ladies enjoy some veganism!

Happy Holidays!!

Merry Christmas Ivy!!! I hope you have a wonderful day and get lots of presents. Love you!

Jessica, Kim, Chip

Have a wonderful Christmas!

To all of you in Ivy's family and to Ivy too, of course. We love you!

Lynn & Russ

Merry Christmas Ivy!

You've given us all the best gift we could hope for with all your progress.

Big hugs and lots of love,

Amanda

Big Thanks

Thanks to everyone at SLO high school for all your help and concern. As we've mentioned before they've been working hard to find ways to help with Ivy's recovery. That work has manifested most recently in the form of t-shirts and hoodies that they printed up to raise money for Ivy. Thanks to all the staff and students who worked so hard to make this happen. If anyone would like to purchase one of these items, please contact Jenny Macartney at: jmacartney [at] slcusd [dot] org, and please put Ivy's name in the subject line so she knows you're not trying to sell her discount pharmaceuticals or infect her computer.

There may have been some confusion regarding recent posts. I mentioned that Ivy went "home" from the hospital, but I failed to mention that she came to my "home" in Burbank. My apologies. However as I write this, Melinda and her are on their way to their actual "home" for the weekend. First stop: SLO High to visit some friends. This is her first time back, out of the hospital in five months! The days leading up to today have been exciting, and she gets emotional just thinking about it. If you don't get to see her this time around, don't worry, she'll be making frequent trips back until she's well enough to move back permanently.

Side note: This is the 100th post on Ivy's corner!

MOCA

Ivy decided (quite out of the blue) that she wanted to go to the Museum of Contemporary Art. She had been there once before to see the Masters of American Comics exhibit. It must have made an impression on her because she wanted to go back and see what's being exhibited now. Currently they're showing work by Martin Kippenberger (Paintings/ Installations) and Louise Bourgeois (Sculpture). We weren't at all familiar with the artists going in, and it seemed that Ivy didn't really care for the work, though we all had a fun outing (Mom, Ivy and I). Ivy mentioned that she preferred the sculptures overall, with a certain fascination with this eerie piece:

Outside the museum they were shooting a movie or a commercial of some sort. We didn't wait around to see if they dropped the cars, although it would have been a spectacular sight!

Strange Stranger

A guy came up to me and "mommy dearest" on the street yesterday and gave us two tickets to a museum called "Psychiatry: Industry of Death". He bragged about how it was a multimillion dollar facility and it was built by a "non-profit" (Didn't actually say "Scientology" though). In with the tickets was 20 bucks. Mom tried to give the money back, but he wouldn't take it. I kept the money and left the tickets in case someone else wanted to go to the museum. When mom noticed the tickets were gone, she went back and grabbed them so we'd have proof of our creepy story.

Me, home with my loot.

My loot.

Love you Ivy!

Hi Ivy and Family!

I wanted to check- in with you to see how life is going.  Ivy, my thoughts and love are with you always.  

I have a small gift to bring by; if someone (anyone) could let me know the best method by which to get it to you, I would be appreciative.

Cheers to a speedy and well-rounded series of improvements, my dear.

Love to you and your family!

Hi Ivy!

Hey, Ivy (and of course everyone else)!

Just checking in to see how things are going now that you're finally back home? I'm sure Biscuit is very happy to have you back!

Hi from SLO

Hi Ivy. I just wanted to say hi and tell you I was thinking about you all day. So there you have it.

Truly a TIme for Celebration!

What wonderful news to hear that you are home again, Ivy! Congratulations and keep up the good work. Happy Tofurky weekend to you and your family. Love to all.
Monique

Happy Thanksgiving Everyone!

Hi! I miss you all! Enjoy your thanksgiving and all the food! Thanks for helping and supporting me.

Gosh... is there anything to be thankful for?

IVY! IVY! IVY! That's what I'm the very most thankful for this year and today. And for all the people who rallied around; medical people, family and friends. And the critters in the wings too (who would have been closer if they'd been allowed). There is just no greater gift I can think of than having you back, Ivy.

I hope you have a wonderful day today, and revel in not only being here with everyone you love on your beautiful green planet, but the brave new world that is opening up with a new administration coming to us this next year. I think even more of our shared dreams might come true soon...

Love to you and yours.

Lynn

Happy Thanksgiving, Alvarado Family!

Just a quick note to wish you all a most wonderful Thanksgiving.
From what I'm reading in the blogs there sure is lots to be thankful for.
God Bless!

~DesiRee

Release

It may sound sudden, but Ivy was released from the hospital today! It's been in the works for a couple weeks, but I didn't want to say anything until it was a sure thing. It's much sooner than we expected, but obviously for Ivy it's been far too long a wait. We'll be continuing therapy at home and she'll be going back to the hospital a few times a week for therapy there. She is very tired but happy about leaving the hospital after four months!

Ivy takes down her birthday streamers.

Last day in room 656!

Mom and Ive get ready to leave.

Another Brief Escape

We got Ivy out again Sunday. She once again spent time with Biscuit and went over to grandma's in the evening. This time we ate out at Charlie's Trio for her first restaurant meal in over three months. We came back to Grandma's and watched "Juno" before Ivy treked back to the hospital. We've been concerned with Ivy's attention span since she regained consciousness and started communicating. Sometimes it seems very short. But when watching one of her favorite movies she was able to really focus in and enjoy it. At least we know she is capable of focusing for long periods of time when she wants to.

Ivy, I am so proud of you for all of the progress you've made. You are the strongest person I know and I truely love reading the blog and watching all of your videos over and over again. I think about you everyday and all of our crazy memories. I wish that I could be with you everyday making new ones. I can't wait to see you again Ivy. I Love You soooo much.

Jessica

Furlough

Ivy had a 12 hour leave on Sunday.  For the  first time in three months she (officially) got out of the hospital!  Her first stop was my place, a few miles from the hospital, where she was greeted by her dog Biscuit.  Ivy couldn't stop the flood of tears when she first touched her.  She's been telling us how much she's missed Biscuit every day for the last month! We then had a quick vegetarian tamale breakfast and she was off to get more blue and a trim.  While we were waiting for the hair dye, we took a stroll around Burbank.  After her hair was all prettied up, we stopped off for a quick rest at my place, then loaded up Biscuit and headed to Grandma's for a nice feast and some chill-out time with family. Melinda and Ivy returned to the hospital by about 8 and Ivy was asleep literally seconds after she got into bed.  What a day!  We had been waiting for it for a month, and Ivy was beaming the whole 12 hours.  Hopefully we will be able to do this every Sunday!  I didn't have access to my digital camera so I don't have any pics to post yet, but I did get some shots with Elle's 35mm camera, so I'll try to post those when I get them developed and scanned...

Very Belated Post

Before I post what I'm supposed to post here, let me apologize to Pat for taking so long to post this for her. I'm sorry Pat, truly sorry. Love, -elle

Here is the original post from Grandma (Pat) to Ivy:

Ivy, Grandpa would go shopping with me for any reason except greeting card shopping. I took too long to pick out the cards, however, I know he would like the card I found for you this year.(No matter how long it took to find it.)

"Granddaughter"

Nobody can give to the world what you have to give.
-Who else would wear a t-shirt that said "Free Hugs" and mean it?

Nobody can smile your smile.
-Who else would smile that beautiful smile to everyone she passes?

Nobody can laugh your laugh.
-Who else would laugh at Frank's (Dad's) jokes, the way you do?

Nobody can shine your light.
-Who else would make everyday full of sunshine?

Nobody can be wonderful in the way that is is so truly you.
-Who else would call someone handsome when no one else had?
-Who else would tell a teacher "Hi cutie, you look so pretty today!" or love all living things; bugs, animals, trees, plants, and even human beings the way you do?

Could there be any better reason to celebrate?
-Who else could give all those who love you the best reason of all to celebrate as you regain your health a little each day?

We know it's very painful and wish we could do your therapies for you. Since that can't be, keep up the good work. We want you to be the best you can be.

Happy Birthday Ivy! We love you so much.

To help save Mother Earth, I will:
1. Turn the water off when I'm brushing my teeth.
2. Use biodegradable trash bags for cleaning up after Ike.
3. Turn the water off when I'm washing the dishes.
4. Taking and using the reusable shopping bags at the store.
5. Recycling whenever possible.

My list isn't long but you do make me aware of what I can do to "Go Green" and I will keep trying to do more because of you, Ivy.
Love,
Grandma

Happy Halloween Ivy!

Happy Haloween!

Sending you happy thoughts of last year's scaring festivities...It's not going to be the same without you in the gorilla suit.

What the heck??

What the heck am I seeing?? Very nice Ivy. It looks like you could ride that thing all the way to AG/SLO!! Atta girl Ivy.

Trike Ride!

This footage speaks for itself:

Ok, so I'm a dork

Oh my goodness, Ivy...I didn't even realize there was a video here of you eating your birthday cake!
And thanks to you, once again, I sit here typing through tear-filled eyes. (Geez, you'd think I'm a big cry-baby or something!).
I am just so amazed at how well you're doing. I just love seeing you smiling, looking around, and chowing down on that chocolate cake!

As always, Ivy...
You Rock!

God Bless!

Hey Ivy

Hi Ivy, just checking in and seeing what's going on. I can watch that video of you eating your birthday cake over and over. You are so happy. Jessica and I sent you a package. You should get it in a few days. It'll have to go into the birthday pile. One of these days you'll get to it. And it'll be your birthday all over again. We miss you, love you and think of you everyday. See you soon.

Love, Kim and Jessica

Ivy in Charge

A bit over a year ago Ivy & I were assisting Melinda during a bat talk to 100 junior high girls at a science summer camp. Besides being a natural public speaker (warm and articulate), Ivy asked the girls to please not assail Melinda with terrible bat stories, explaining that these stories were unhelpful and upsetting to her mom. Imagine that--a sixteen year-old looking out for her mum's feelings!

You're the best Ivy! I'm delighted to hear that you're stretching out your birthday celebration. You should also consider having a "do over" birthday in January when we are all in need of a holiday. ;)

Love,

Mary

LOOKIN' GOOD

Ivy,
You look great! I am glad that you got a mouthful of that yummy birthday cake. We had a doctor appointment in Pasadena yesterday and had wanted to visit but your Dad told us you had not been feeling well. So happy to see your big smile on the blog!
Love,
Candy and Dick

Happy Birthday GIRL!

I'm so sorry this wish is late, and would have given anything to be with you there on your birthday. You are completely amazing and I love you dearly!

Love always,

WOMAN

B-Day

First off, thanks for all the birthday wishes. Ivy really appreciates it, and I'm sure she'll post something here shortly.
She's just recovered from being sick the past few days to have an excellent weekend. She was so overwhelmed with gifts and cards on her birthday, that the majority remain unopened. Ivy seems to want to pace the gifts out over the next few weeks to really make her birthday last. She's been all smiles since Friday, so thanks again to everyone who have written, sent, posted here, etc.

I know most of my posts are about how well Ivy is doing. And I do have a tendency to omit some of struggles along the way. Seeing only the good news may give someone a sense that I'm not being completely objective in my assessment of Ivy's progress. I admit that it is difficult to look at things honestly when one has such a vested interest in a positive outcome. But let me just say, without a doubt in my mind, and as impartially as I can possibly be that Ivy's progress astounds me now more than ever. The entire staff here is blown away by what they've seen in just the past few days. Physically, Ivy's posture looks great, dexterity in her right hand has improved, even her troublesome left arm/hand/fingers have started moving! Cognitively, however she's made the most progress. Her vocab is expanding and I think nearly what it was before. Humor is back in full force, and she quick with it! Her sentences are getting more complete, and I think she'll start stringing them together into more expansive and complex ideas soon!

Happy Belated Birthday, Ivy

Dearest Ivy,
I'm sorry to say I'm late in wishing you a most wonderful birthday.
I do hope it was truly a wonderful day!
Happy Sweet 17!

Big hugs,
DesiRee

Happy Hatch Day!!!

Well you did come from an egg, didn't you? :)

I've been crazy busy all month, but I did pay attention to Ivy month and did my small part in the world. I carried around a pair of washable cups and drank nothing but water all this week. No encouraging polluting plastic factories and no adding any kind of drink containers to any pile at all.

I also switched to a more environmentally friendly laundry detergent and gave all my Trader Joe's reusable bags to a friend who always has excuses not to buy her own. Next trip to the store I'll buy more so then that's TWO people instead of one reusing their store bags.

Not exactly earth shattering, but small things count too!

I hope you've had a wonderful birthday today. Many happy returns!!

Love,
Lynn

Happy Birthday from the K Krew

Happy Ivy Day!!! And Happy Birthday! My sister-in-law, Chryee wanted me to send a special "hello" from her too, as it is her Birthday as well.
For all you out there celebrating Ivy Day, don't forget to post what you have done to help Ivy make our planet a better place.
We love you, Ivy,
clint, janet and special hugs from Aubrie.....

She still prays about that balloon getting to you.

HAPPY BIRTHDAY, IVY

BIRTHDAY WISHES TO THE SWEETEST, BRIGHTEST GIRL IN THE WORLD!
GOD BLESS YOU TODAY AND ALWAYS WITH STRENGTH AND PERSEVERANCE IN CONTINUING TO MAKE SUCH GOOD PROGRESS!
LOVE,
CANDY AND DICK xxxooo

Happy Birthday Sweet Ivy!!!

Happy birthday to you
Happy birthday to you
Happy birthday sweet Ivy
Happy Birthday to youuuuuuuu!!

Woo hoo - look who's 17!!!!

Happy Birthday

Woo Hoo!!!!!!!!! Happy Birthday :) finally 17! I love you Ivy, and I hope you have an awesome birthday. Hopefully I'll be seeing you soon.
Love,
Jessica

Happy Birthday to YOU!

HAPPY BIRTHDAY GORGEOUS ONE!!!

The boys and I are checking on your progress everyday and, as always...you're still amazing!! YOU continue to inspire me and make me want to do and be better. I miss our long philosophical talks about animal rights, vegetarian cooking and PJs w/feet and can't wait for the moment I see your beautiful face again. I hope you have a fabulous day and I know this will be a spectacular year of triumph for YOU! I love you buddy. Kiss your mom for me...XOXOXOmrsbenson

Happy Birthday

I figure I won't be using the computer for a couple of days, so I just want to say...

HAPPY BIRTHDAY IVY!!!

I love you very much, and hope you have an awesome day tomorrow. You really deserve it!
Love always,
Lauren Reeves :)

Hey Ivy

Hey there Ivy.
I miss you like crazy! You're birthday's coming up real soon, I'm trying to get some time off from work to come see you. I expect us to have a full blown dance party :) i miss our rock out sessions before work haha. Well i hope to see you soon my love!
Love Always and Forever,
Jessica

Once Upon a Time

Once upon a time I knew a little girl who was interested in everything and CARED about the WHOLE WORLD! She followed her busy mother around and watched and listened to everything everyone said and she got involved in everything too. This little girl took care of sick and injured animals when other little girls were just taking care of dolls. Even when she was just a bit of a thing she stood up and said what she thought when someone treated an animal badly. She didn’t just stand up and speak for animals, she spoke for her Mother Earth too, and she DID things, BIG things, to make the planet better and to help other people understand why this was important and RIGHT!

The little girl grew into an amazing and beautiful young woman who just kept doing more and more for the world and who became more and more creative about how she went about doing it. Then one day the little girl had a terrible accident, but as it turned out, it wasn’t such an accident after all, and though it was terrible in many ways, because she and all her family and friends suffered, it was wonderful because it gave her the opportunity to show people how to overcome even the things that seem the most impossible to master. It also galvanized her friends to carry her torch for kindness to other species, for balance and for global harmony even higher and farther.

Ivy, every day you are rebuilding and mastering the pathways of your brain, one of the most complicated environments we humans know about in our current state of development. If one individual can do that, then surely we as a planetary community can rebuild and restore our environmental pathways to work in harmony and develop into something better and more beautiful still!

As always you are a leader. And as always you had to do it YOUR way, even when it rattled the rest of us. You GO girl!

Love you all to pieces,

Lynn, Russ, Chewie, George, Entree, Appie, Gus & Teranga

Ivy's Month

I'm a bit late on this, but being that it's Ivy's birth month there are many things in the works. Clint got the ball rolling on this with his idea for Ivy's Day, and San Luis High has been working on some amazing ideas to honor and help Ivy.

I'll start with what is going on at the high school. In honor of Ivy's commitment to environmental causes, they've started something called "Go green for Ivy", which involves students pledging to do something to positively effect the environment. Pledges are written on an Ivy leaf, and displayed. "Income for Ivy" milk jugs have been placed around the school. Students are also making and selling hemp bracelets with all proceeds going towards Ivy's recovery fund. They're also working on an Ivy t-shirt with a bat motif, to be designed by the nice people at Hep Kat, and Left Coast T's has greatly reduced the price of their services for the occasion. Other fund raisers include a bake sale and a movie morning at the palm theater. Details will follow. Thanks to everyone at the high school for their continued support and concern. It's truly overwhelming to see all the people rallying for Ivy.

I thought this would be a good place to revive the discussion around Clint's concept of Ivy's Day (to coincide with Ivy's birthday). The idea is best summed up in his own words:
"Wouldn't it by cool for us all to see Ivy as a stone dropped into a still pond and then we are the ripples created by her simple actions? So how can you help Ivy make the world a better place?
A list of Ivy inspired actions:
recycle more
convert to alternative fuels
mentor a child
eat less or no meat
use non animal tested cosmetics
use biodegradable products/soaps/cleaners
adopt an animal
abstain from dissecting animals
spend time with an elderly person
give money to a food bank or other responsible aid organization
Be creative. Do it for Ivy, for the world and for yourself."

Those who are interested in participating can sound off in the comment section of this post...

The Post About Reading (Part 1)

We dug up Ivy's phone today, at her request. After she explained a few basic operating instructions to us, we fired it up. She was so happy to see it running again! She couldn't remember her voicemail password, but we noticed she had some text messages so we thought we'd read them to her. The first one I opened was from her friend Conor, on about July 27, a week into her coma. I think he sent it while he was visiting her at French Hospital. Anyway, it was hand written in a paint program in big colorful letters. I thought this might be easier for Ivy to see than the tiny font of a normal text message. We showed it to her and she looked at it for a second. I said, "Can you see it Ive?" She said, "Yeah." "Can you read it?" I said. She didn't respond at first, so I started to say "What's the first letter?" At the same time she said, "Get well soon." She had decoded it! It was the first time any of us had seen her read anything! Later we read a little from "Where the Sidewalk Ends".
From what I understand (as a completely ignorant layman), the area that processes the meaning of symbols (letters) involves a different part of the brain than the area associated with speech. It's been amazing to witness different parts of her brain start to come on-line again. Of course they aren't coming back at 100% yet, but there's no reason to think she can't make enormous improvements over time!

Hello

I love you guys. I miss you guys. And I'll be back in the nick of time!

Dearest Ivy,

I first met you approximately 4 years ago. I heard about some of your accomplishments before I met you. To say the least, I was quite impressed, if not a bit envious. Who is this young person, many years younger than me, who has more courage and strength than I could ever imagine myself having. I’m referring specifically to the meeting with Fish and Game officials where you got up in front of a bunch of adults to tell them what you thought about the way things should be, in such a way that commanded respect and attention. And finally, I met you, and I could see the remarkable person you are and begin to understand how you could do what you had already done at such a young age.

As the years went by, we periodically met at bat events (I always look forward to the times that you and Melinda are with us at these events, and I know you would say that it’s only because when you are there, I work less!) and I watched you grow into an even more amazing young woman. I love hearing about your accomplishments, your aspirations, your choices to protect and fight for animals, fight for life, be it bats, cows or chickens. In your young life you have already taught many people with your strong conviction and absolute passion in what you believe.

I, like many others, have been watching your progress and am ecstatic at every improvement, every amazing development. And yet, I could expect no less from someone with your character, strength and spirit in which you approach everything you do in life. Melinda, Frank, Casey and all of your family have done an outstanding job in mentoring, guiding and helping you to be the wonderful, gifted person you are. I am honored to be a part of your life, despite the distance between us and look forward to pestering you again very soon.

Love, sloppy kisses and hugs – even though I haven’t showered in days!
Monique

Trachi-outta-me

It's out! After about 2 1/2 months the trach is out! Once it heals, Ivy will start to strengthen the neck muscles that have been tethered around the trach, making her swallow stronger, which will allow her to eat more by mouth, which leads to getting the feeding tube out! It's a vicious cycle of goodness!

Note: Those of you who know Frank, know that he has a reputation for having a... shall we say... unique sense of humor. It involves some sort of word play, usually a pun. In our family we call these "Frank jokes". Needless to say, we have Frank to thank for the title of this post. Ivy liked it so much she's been saying it to every nurse or doctor she's seen today!

Goldfish

OK, so I’m sitting next to Ivy on her bed….feeding her ice cubes. I complain…"The ice is swimming around like goldfish….hard to catch."

Ivy sez "I would like a goldfish."
Then I ask her "Ivy, what would you do with a goldfish?"
"Eat it", was her reply.

EAT IT?!...........I was horrified.............. "Ivy, you really DO need therapy."
"Mom, I mean goldfish crackers….I can’t imagine eating a REAL goldfish. That would be gross."

A little later in the day, dad brought Ivy the CORRECT kind of goldfish.

Trach

Ivy's trach came out on Monday, unintentionally. Melinda noticed it was at a peculiar angle while feeding her, and after looking under the dressing, found that it was completely out.  After several attempts by respiratory to get the trach back in, they had to call in a doctor to dilate the hole and get it back in there.  The whole experience was pretty upsetting to Ivy, and the next day she was tired.  She probably doesn't really need the trach anymore and the ear, nose and throat team is looking into removing it.  I think the trach's days are number.  When that day comes, lets burn it an effigy!

On a personal note, in keeping with Clint's proposal for "Ivy Day" I'm going completely non-meat for at least the month of October. Anyone want to join me?

Four Days

Ivy's improvement over the past four days has been the most dramatic we've seen yet! I'm not exaggerating, I'm stating this objective truth. I think there is finally a good balance on all her meds, and she's starting to get comfortable here. She's settled into daily routine, which allows her to sleep through the night, and be more alert during the day. Her vocabulary is coming back, she's forming more of her own ideas in conversation. She plays uno (with help holding the cards). In the physical therapy gym a string hangs from the ceiling. Ivy has been reaching for it everyday since she got here. It wasn't an exercise or anything, she just started doing it on her own. Yesterday, after two weeks of trying, she was able to reach high enough to touch it! Little accomplishments like these really boost Ivy's confidence. The last four days we've seen a lot more laughing than crying.

YOU GO GIRL!

I'm checking on you every day, and your just amazing! Keep up all the good work, and of course your wonderful "sprite"....Love from Nipomo...Paula

Ivy Rocks!

Ivy, I've been checking your blog every day to see how well you're progressing.
Can I just say that you never cease to amaze me? You are so strong! You hang on to that determination (not willfulness, Mom, but determination!) and remember that I told you being mad at all of this is good. Just remember to focus your frustrations on getting better and beating this! I would *love* to see you walk into the peds unit at Huntington and show off to all of us how very mighty you are!

I talked to my friend Heather about you. She's the one that plays with Tigers all day at the Wildlife Waystation. She said to let her know whenever you're ready to visit and she'll make sure you get the best tour!

I am still praying for you daily, that God will continue to give you the strength to overcome.

Rebuilding

It's taken two months, but now that she's medically stable and in the right place Ivy is able to focus on rebuilding.  She is working hard in therapy. We've seen a real change in her attitude toward working on relearning how to move. Everyday she wants to exercise! She is definitely favoring her right side. Her left leg is in really good shape, she is able to scan her eyes to the left sometimes, but her left arm is problematic. Contracture is the concern. She is able to relax her muscles but can't really purposefully move it. We're working with it, but how much movement she'll regain is still unknown. 

She's been standing up lately! She wears a pair of braces that lock her knees into place as she's lifted up by a special table. She get a huge smile everyday when she does it.

She's also in the process of fighting off a staph infection found in her blood and in a lung culture. They're having a hard time locating the origin of the infection.  The concern is that it may be related to her heart surgery, though as of yet they haven't found any such evidence. 

We had a meeting yesterday with all the departments assigned to Ivy's rehab. It went really well, the various therapy departments have observed progress over the 2 1/2 weeks she's been here. When we came back from the meeting she was doing this:

We've never seen her lift her upper torso this high!  She is almost sitting up on her own!

Thanks to Marco, Jessica, Kira, Paul and Fayhe for visiting Ivy over the weekend. And thanks to everyone who contributed to the quilt! Here it is at the old room:

...and in the new room:

Look for your balloon

Hi Ivy,
Just had to share a little story from Aubrie with you. The other day she and Janet were shopping at Trader Joe's and Aubrie was leaving the store with her TJs balloon in her hand. Janet said they needed to tie it around her wrist so it would not fly away. But being the 2 year old she is, she refused to give it up and in the argument, let it go....
As she burst into tears about her balloon flying away, Janet thought quick and responded, "It's ok Aubrie. We will just send that one to Ivy and she can get it." Tears stopped and a big smile came over her face. "We can send the red balloon to Ivy."
And now, every night since, as we put Aubrie to bed and she says her little prayers, she prays for Ivy and hopes she gets the red balloon. So watch for that red balloon, Ivy, cause it's filled with a whole lotta hope and love for you from Aubrie.
love ya Stargirl,
clint

Wolves back on the endangered list

My dear Ivy,

I just wanted to let you know that the Wolves are back on the endanged list!
The Center for Biological Diversity, EarthJustice, NRDC, Defenders of Wildlife and several other groups brought law suits against the Bush adminstration and won! The Bush adminstration announced today it will abandon it's defense of the decision to remove them from the endangered list.

I know you would be so happy to hear this since at least 100 wolves have been killed by hunters since the Bush administration stripped them of the protection of being on the endangered Species list. But the killing will have to stop now, thank goodness!

Ivy, you're looking fantastic and your progress amazes me. We can't wait until we can come see you and Melinda. We miss you both so much!

All my love,
Karen Moreno

Hi everyone! 

Last weekend, Jeff Nicklas and I got lucky enough to go down to LA and visit Ivy! It was such an awesome experience and so, so much fun. We were able to talk to Ivy, hug her, and share lots of laughs with her. We also got to go outside and enjoy some time in the hospital's beautiful court yard. Below is a picture from our trip of Ivy with Jeff and I. It was a beautiful weekend, and so so awesome. I want to thank Melinda again for letting us come down and hang out in the hospital with your family. 

Also, for those of you who didn't get to see the completed quilt, here it is! Thank you to everyone who went out of their way to help make it. It turned out amazing and Ivy loved it. 

Ivy, we love you so much! There are lots of things going on at school for you and I know everyone is super stoked to see you! 

Love, 

Lauren R.

Overdue Graditude

THANK YOU!!
The outpouring of deep love and concern shown to Ivy has been phenomenal. During the 21/2 weeks in the French Hospital ICU, there was a constant stream of her friends ranging in age from 2 to 80+…..These were all people whose lives had been touched in such a way that they wanted to take the time to show you, Ivy just how much you are loved and just how much you are missed.

People brought in flowers, books, meals and snacks….but most importantly they brought in the positive healing energy Ivy so needed to begin her long, hard and painful road to recovery. She wouldn't be as far along as she is now if it hadn't been for all of your support. We are forever indebted and will never forget what you have done for our family. THANK YOU ALL SO VERY, VERY MUCH.

There was never a time when there was fewer than 5 people with her and at times it was as many as 15. Everyday someone new arrived and many people visited numerous days. The list includes her classmates and their parents, SLOHS faculty, Pacific Wildlife Care volunteers, French Hospital administrators, doctors and nurses, Alan Roinstead Construction employees, family friends, neighbors, and even friends of friends. The list follows: Kira; Robin and Haley; Rusty, Doug and Russell; Chuck, Alan and Katherine; Alan and Kathy; Claire; Cecilia; Jessica, Chip and Kim; Jolene and Jody; Claudia; Dani and Bill; Connor; Kara, Yarrow and Sunshine; Marco and Linda; Sonja and Ken; Jenny; Jim V; Virginia E; Nick and Spencer; Mary, Sherm, Sheri, Paula, Richard and Lacey; Kyle and Thea; Mary; Charlotte; Elly; Kathy; Ray; Lauren; Stephanie; Clint, Janet and Aubrey; Peaches, Tara and Ali; Marty; Howard; Meg; Liz; Kelly; Kathy and Bob; Paris and Brittany; Jeff, Steve, Debbie; Bob; Dave and Lisa; Wendy; Kathleen; Jan; Paul and Fahey; Ellen; Robin and Larry; Unfinished Business; David and Anita; Jim and Bev; Kelly and Grace; Jim G.; Virginia F.; Shelley; Jo and Oscar; Lynn; Ann; Debbie; BJ; Marcelle; Tim; Harold; Dorothy; Jay and Elaine; Marilyn; Andrea; Jeri; Lauren R.; Lauren M.; Amber, Paula, Richard and Lacey.

If you are not on the list and should be included, please let us know. We want Ivy to know who you are. She will be, in good time, visiting her blogspot.

An enormous and deep felt thanks to all the doctors, staff and contractors at French Hospital and especially Randy. You were the rock….always patient when explaining the same thing for the ump-teenth time, keeping me grounded and encouraging me at the same time. You showed so much empathy and compassion in the many things you did for our family. Even though it was your night off, you came in to be our nurse on the night we received the diagnosis that Ivy would probably be in a vegetative state for the rest of her life, you organized the means to wash and re-dye the blue streak in her hair the night before her departure for Totally Kids, you never --- ever complained about the number of visitors who came wanting to see Ivy, you even helped other ICU patients understand why our joy was spilling out into the rest of the ICU unit and most of all ….. you were attentive to Ivy’s every need. A very special shout out to you!!!

One of the things Ivy loved to do was dance. It was an important part of her daily routine. Whenever I couldn't find her in the house, I only had to open the door from the kitchen into the garage and there she would be……Ipod in hand, headphones in ears …..dancing with a smile lighting up her face. When she is again dancing, and I believe she will be dancing again, we will be having a gi-normous dance party celebrating life. There will be live music performed by the local 50/60's rock band Unfinished Business. We will let you know the details when we have them.

Thanks again.
Love you all,
Melinda and Frank

PS From Melinda to my amazing friends who are leaving me messages on my cell….that is when it isn’t full….I so appreciate hearing your voices….it is a huge source of comfort to me. I just haven’t the energy to return calls….all my being is directed to Ivy’s needs and to her recovery. Please continue to call…again the messages help enormously!

Great Days

Hi Ivy. Well I finally joined the blogging world. I know I'm behind the times. I just mainly wanted to say hi and tell you that I love and miss you and hope you are having great days. I think about you everyday and pester Jessica with questions. I haven't gotten a blue streak, but does it count that I re-did Jessica's streak for her last weekend and had a blue thumb for a few days?

You are making tremendous progress Ivy. You are an amazing, strong, beautiful girl. I am so glad I know you. Thank you for being Jessica's friend. Thank you for being my friend. I love you, I miss you, hang in there, be tough and do what ever you have to do to get back here soon. We all miss you and can't wait to see you.

LOVE & BEST WISHES

I check your progress every day, and say my prays for you and your family everyday...You and your family are so very dear to us, and have been for 20 years. Your Mom used to let Greg & I babysit you. You always brought your little chair with you, so you could sit right in front of the TV. You were so sweet, we loved keeping you and playing with you. You'll have to ask your Mom and Casey, about some of the wonderful times we all shared, then you'll know how much love we are sending your way, today and everyday. Paula Lyon & Family

I Love Ivy!

Ivy is the strongest, most amazing person I know. She encourages me to be the best person I can be in so many ways, including (but not limited to)... loving and saving birds, learning about bats, using compostable cups, teaching me how to vermi-compost without killing my poor worms, using "green" materials, loving the bio diesel idea for her car, eating less meat, and being an altogether sweet and caring person.

This past June I had the opportunity to go with Ivy on our ASL (sign language) fieldtrip to Six Flags! Ivy, Shannon, Jason, and I toured the park for the entire day having fun and enjoying our time. I thought about how blessed I felt to have Ivy's company throughout the day. She spent the day texting lightning fast and telling me how excited she was to be a senior next school year.

I am thankful for the time I've spent with Ivy thus far and look forward to her recovery. I know if anyone can recover from what she's been through, it would be Ivy because she's smart, capable, and all-around amazing.

Ivy, the support around you is immense. Your parents are truly amazing, as are the rest of your family and friend supporters. I wish you the best and love you very much!

Transfer

As I write this Ivy is en route to her new temporary home. We went with a hospital rather than a rehab facility in case any heart related issues came up.  It's a nationally recognized hospital with an outstanding acute rehab facility.  Here she'll be seen by some of the top specialists in LA!  

Yesterday Ivy's doctor said she could have her trach removed as well.  With the transfer today, I don't know how likely that'll be.  It should happen soon though!

Ivy, I can't wait to here your voice. I love you.

jolene and ivy

I met Ivy last year, when I was in 2nd grade. Ivy is my big sister through High school Bigs. (Big Brothers Big Sisters Program). Ivy would come to my school and play with me every week. I had so much fun playing with Ivy, Conner, and Nick. Ivy and her friends came to my birthday party in April. We had to make sure we ordered a special vegetarian pizza, just for Ivy. I really love and appreciate everything Ivy has done for me. I love you so much!!!! Hope you get better soon and come home! Love and kisses, Jolene

Acute Girl

Things are progressing very rapidly in Ivyland. Or should I say Ivywood? Anyway, things are moving shaking. One thing that we have been trying to push for is getting Ivy to a point where she can have her trach removed. Not before she's ready of course, but we have been trying to get the staff to at least look into it. This would require a series of swallow tests to see if she can protect her airway as well as some other evaluations. Eventually it will lead to her being able to drink, then eat and if she were doing well with that for a while, the trach comes out. We were told last week that Ivy was not a candidate for a swallow test. They reversed their decision this week when they found out Melinda had given her some water already. She didn't know she needed a doctor to order water, Ivy had just asked for some and mom gave it to her. Anyway, days after not being considered for a swallow test, she passed it, and is now authorized to drink and eat ice! After she does well with that, the next step will be to get her eating liquid food, then solids.
This news, coupled with Ivy's recent talking, prompted the physical therapy physician to evaluate her again. He determined that she is ready for acute rehabilitation! So she has about one more week here in the hospital and then its off to another facility where she can get holy three: physical, occupational, and speech therapy for at least three hours a day!

Hi Ivy and Family:

We are beyond thrilled at Ivy's progress. I will never forget Frank, how you told the doctor at French that "Ivy is not a quitter," and you were so right on. I appreciate this Blog and its contributors for keeping us updated on Ivy's journey to 100% health, and Frank, Bless You, for keeping the Smith Family informed via telephone on how that sweet child is faring. It is very generous of you. My thoughts, hopes & positive vibes are directed at Ivy, Frank, Melinda & the rest of that lovely family on a daily basis. Grace and I can not wait to take that horseback riding trip on the beach when Ivy fully recovers!! Grace, age 9, wrote this poem for Ivy after I showed her Ivy's video on the Blog and updated her on her progress:

A Poem For Ivy

All around the world every person every place is looking at you and your smiley face You're a joy to every animal in the sky and on the ground You'll find them all if you take a look around If you look in the trees you'll find a hive of bees buzzing a tune for you They'll be getting the flowers ready when you take your first walk nice and steady then you might go home and cuddle with your teddy Your bats will be around you saying "hello" and then maybe they will put on a little show And when they are finished they'll smile and cheer and of course when they're done with that you will have no fear The snails will be waiting at their circus ear to ear You will be very proud but instead this one won't be so loud When you're all better which you almost are you'll be going to school hardy-har-har!

~Grace Elaine Power Smith, Age 9

From Grandma

Ivy's grandma, Pat wrote a few words to share with Ivy and all of you....


Ivy, on the day you were born we all saw a beautiful baby girl with black, curly hair and gorgeous eyes. It was love at first sight for your mom, dad, Casey and all us other lucky people. Little did any of us know that the beauty was inside as well as outside. As the saying goes, "beauty is not only skin deep."
You have touched so many lives, including the two hospitals and your stay in Sun Valley. Even the visiting pet Mai was reaching out to touch you with his paw. He wanted you to know he was there for you also.
Everyone is praying for you, in their own way, because we all know you have a lot more work to do for this crazy world of ours.
The other night as I was leaving I told you, "I love you" and blew you a kiss. You mom said, "wave goodbye to grandma" and you smiled and blew me a kiss. That was the best thing that happened to me ever. Thank You!
If I could I would change places with you in a heartbeat, but since I can't, please know I'm hear for you in any way that might help.
I love you so much!!
Grandma

Video

Here's some video of Ivy talking. Again, her voice is very weak at this point. She still has to relearn how to coordinate her tongue and lips.
Notes: In the first clip, mom is giving her water with a little sponge. In the second clip, she is talking to Marco. She says: "Hi Marco....yeah.....good."

Some quick background: Years ago, when Ivy was about five, there was a beer in the fridge. I don't remember how it got there, because mom and Frank weren't drinking beer. But it was there, in very back of the fridge, and it had been there for years. Ivy though, thinking it was a soda, fished it out from behind all the food, opened it, and took a swig. Of course after tasting it, she immediately spit it out. She had no idea what this awful substance was. Mom explained to her that it was beer and adults drink them. She couldn't understand why anyone would drink something so foul.

Word Up!

Ive gives us a wave!

Last night was a big night! Elle and I ventured over to the hospital after work to see Ive and to relieve grandma, who had been on lookout duty for quite a while (Melinda was getting some much overdue rest). Ivy had been sleeping most of the afternoon and woke up a couple hours after we arrived. She was more alert than usual right from the start. We had Aladdin on for the 43rd time (she refuses to let us watch anything else) and she was really focused on it. It was the first time I've seen her have the attention span to focus on the TV for long periods. While she was watching, I was giving her water. That's right, she's drinking now! We feed it to her via a little sponge, and she's able swallow it down, no problem. I couldn't help but notice how unusually alert she was. She was really moving her right arm around and giving us really deliberate facial expressions.
At a certain point, my fatigued brain accidentally decided to ask Ivy a question which didn't have a simple yes/no answer. I can't remember what I asked her, but before I could reformulate, she was mouthing an answer. Elle and I just looked at each other in disbelief. Ivy was clearly forming words with her mouth. We investigated further: I explained to Ivy that her trach was preventing her from making sounds, but if I blocked with my finger, she would be able to at least try to make a sound. I asked if she wanted to try, and she said yes. I put my thumb over her trach and told her to say "AAHH". I waited and finally heard a faint "ah". We couldn't contain our excitement! I quickly asked if she could try a word. I said, "Say mom." Again, a brief pause and I heard a very weak "Mom". Elle and I erupted into tears. Ivy smiled. Then the three of us set about planning a big surprise for mom's return. When mom came back, we called her close to Ivy. At almost a whisper, Ivy said, "Hi mom." Mom was floored, instantly sobbing. It was one of those rare moments of pure joy.
We spent the rest of the night, through the morning truly conversing with Ivy. Her voice is very weak right now, so it takes a while to get at what she's saying, but she incredibly patient. She can spell it out, if she comes upon a troublesome word. Ivy's attitude has been incredible throughout all this. She has moments of frustration and pain, but she is absolutely fearless about her recovery.
Today respiratory therapy added an attachment to Ivy's trach which allows air in, but not out. This enables her to utilize her vocal cords whenever she wants/needs to. She hasn't stopped talking since. She's been on the phone, teasing nurses, saying hello/goodbye to anyone who walks in the room.
Video to follow soon...

Changing the world

Since I started keeping up with this blog and the community of people who contribute, I have been trying to think of something meaningful to add. Something to share or inspire. The idea finally hit: it's called Ivy's Day.
Here's the plan in its infancy. As others read and come up with ideas, I hope you will share. Basically, Ivy is a girl with a passion to make the world a better place. Any of us who know her know the impact her smile, her personality and spirit have on us. She makes us better. But she wants more; to make this whole world better. She's into animal rights, "green" living, alternative fuels.....you name it. And what does she now have with all of us? A captive audience of people brought together as one community, joined by the common strand of Ivy. She has a platform from which to share her ideas and all of us assembled.
And so on to Ivy's Day. I propose that all who choose to participate look at their lives and find one or more things that we can do to make the earth a better place (see my list of Ivy inspired items at the end). Then, commit to doing it. On October 17th (Ivy's Bday), we either put our commitment on this blog or, looking to next year, write what we have done and how it has effected our lives. Let it be Ivy inspired and then write to her to tell her how you have helped her change the world. Each year we can do something more and maybe share the idea with others.
Wouldn't it by cool for us all to see Ivy as a stone dropped into a still pond and then we are the ripples created by her simple actions? So how can you help Ivy make the world a better place?
A list of Ivy inspired actions:
recycle more
convert to alternative fuels
mentor a child
eat less or no meat
use non animal tested cosmetics
use biodegradable products/soaps/cleaners
adopt an animal
abstain from dissecting animals
spend time with an elderly person
give money to a food bank or other responsible aid organization

Be creative. Do it for Ivy, for the world and for yourself.

Stepping Back To Step Forward

Just wanted to post a quick summary of the past week:
Ivy's replacement defibrillator was successfully installed. The recovery from surgery will set her physical therapy back a week. But by Tuesday she should be picking up her exercise regimen roughly where she left off. Friday and Saturday were difficult at best. I won't go into details, but I will say: the staff overlooked something very basic to Ivy's health, which caused her pain ranging from mild discomfort to complete agony for a couple days. We raised hell, problems were rectified, apologies were issued, and now she's feeling comfortable again. Today, in my opinion, was the best day Ivy's had since the last six weeks.
**A quick note to anyone overseeing the care of a loved one in the hospital: Pay attention to EVERY detail because there is a chance that "the professionals" are not. I know that people in the medical field are overworked. I understand that most professionals take their jobs very seriously and work really hard. But there's always a chance of being blindsided by incompetence and if you're unprepared, it can set the person you love back a couple of days or even worse. Additional note: Nothing like this happened while we were at French hospital. End of rant**

To close, a message from Ivy's Aunt Leann:
Hi Ivy - I have been following your blog, and I'm so impressed by all that I have read from all the people that love you. Wish I could say that I know you as well as they, but what I do know is that you have touched the hearts of many and we are blessed as a family to have you. Just wanted to let you know that all of us here are pulling for you and that you are in our prayers.
With Love
Leann Feliz

elle's Ivy story

This is an Ivy story from way back. My daughter, Kira asked me one day if Ivy could spend the night. The girls must have been about 5 or 6. So I said sure but we have to ask Ivy if she wants to and also if Melinda thinks it would be okay. We got the approval and also found out that this was Ivy's first sleepover. This little bit of information changed everything! Now Kira and I not only wanted Ivy to have fun but we wanted it to be perfect.
It was all going along fine, the girls were having fun, I was having fun with them, and we had decided on spaghetti for dinner. Here's where the trouble starts. I got it cooked correctly(me and cooking, a crap shoot). Then I asked Ivy how she liked her spaghetti. Cute as ever with those wonderful cheeks and awesome smile, she says: "Noodles with parmesan cheese and butter, please." You would think that since English is my only language I would have comprehended this request straight away. This was not the case, I gave her spaghetti with butter, parmesan cheese, and frickin' red sauce! Ivy being the sweet person she is tried to eat it so she wouldn't hurt my feelings. Kira brings the plate back and says "Mom! Ivy doesn't want sauce give her a new plate, would ya!" Twice more this happened before Ivy got her spaghetti the way she politely had asked for it. (So much for a perfect first sleepover!)
The rest of the night went well, but I think Ivy was a teenager before she braved another sleepover that involved elle!
This story is a testament to how patient and kind Ivy is. Ivy I am so lucky to know you and have you in my life! I've loved watching you and Kira grow and all the stages you've gone through. I am especially excited to see the beautiful, intelligent, caring people that you two are becoming. You will do many more great things and I can't wait to see it. I love you with all of my heart! -elle

p.s. If you're going through hell, keep going!

She's still got it!!!!

I'm sure all of you are aware that Ivy can be, how shall I say, sarcastic. Yep, I think that's the right word. I'm sure you are also aware that she can stand up to anyone and let her opinions be known. Well, she definitely still has that ability...
My boyfriend, Paul, and I went to see her on Sunday. We were amazed at her progress with communication. With this new level of understanding we can ascertain what she's feeling as well.
Well, Paul was teasing about Ivy's blue hair streak, like usual. To which Ivy let Paul know how she felt about what he was saying. Instead of the finger she has been using to answer yes/no questions, she chose to use her middle one for this special response. We all jumped up to see and Melinda asked Ivy, "Are you flipping off Paul?". She started smiling really big and then started laughing hysterically.
Like I said, she's still got it!

-----------------------------------------------------------
EDIT:
Excellent post Fahey!!! I just thought I'd chip in some video. I wasn't quick enough to record the initial attack, but I was able to document the immediate aftermath. She is so pleased with herself!

-Casey

Dear GIRL,

I think of you several times a day and check this blog as often and I'm absolutely *thrilled* about your progress. You have a beautiful soul and a beautiful mind - nothing can hold GIRL down! I can't wait to have you come to Bat World again and help feed the babies. So you keep going GIRL, that's a direct command from WOMAN and Bootsana.
I love you dearly,

Amanda

To Ivy

Dear Ivy,
Thanks to Casey & Elle & Ivy's Corner we have been following your progress. You are very beautiful. Even though we have only seen you a handful of times we have always known how special you are. We check each day and can't stop thinking of you because you are in our hearts. There is no doubt that YOU will fully recover, just want you to know that along the way you have our prayers and you are in our thoughts daily.

All our love to you.

Kathy & Ray

Feedback

Gone are the days when we say generically: "Ivy is agitated." Now we say things like: "Ivy's stomach hurts." or " Ivy has a cramp in her right leg." or "Ivy is getting annoyed with all our questions." The reason we no longer have to use the nondescript "A-word" is because Ivy can now tell us what is causing her agitation. A raised index finger means yes and a shake of the head, a definitive no. This removes guessing from the equation, so she isn't given a med that may not be necessary. It is such a relief to have Ivy interacting with us!! Her progress seems to be picking up speed lately.
Physical therapy has been pushing her. They had her in a harness standing, trying to get her muscles reacquainted with supporting her weight. She is stronger sitting up, though she still needs support. When she is laying down, Ivy is able to lift up her lower torso. And she's following verbal commands more consistently. When I asked her if she liked her new room, she said yes.
A few other things worth mentioning:
Frank and Ivy's friends, Jessica and Marco had to go back home a couple days ago. Though Ivy would love to see Frank stay, he had to get back to continue reconstructing the house to accommodate her impending return. Thanks to Jessica and Marco for spending so much of their summer with Ivy. It's really boosted her spirits! I'm sure you'll be back soon. I've heard tell of another caravan of friends heading down in the near future as well. SLO high school has a few things in the works that we're excited about. Thanks again to everyone for the support!

A Second Opinion

On Wednesday Ivy had to go back to the ICU. Her defibrillator is apparently overly sensitive, causing it to activate unnecessarily. She was transfered to a top-notch ICU where they can run some tests and find out exactly what's going on. Ivy is safe. Her heart is fine, the cardiologist sees no abnormalities and the device itself is sound. It's just reading too much information, which causes it to interpret Ivy's heart beat as a faster rate than it actually is. It's stressful, but we've been assured that all that's required is a minor adjustment to the device.
Though it's not exactly good news that she's back in the ICU, it has resulted in much better care. To be completely honest "Totally Kids" has been a struggle. It's the kind of place where the parents really have to keep on top of the staff in order to get things taken care of. Don't get me wrong, some of the nurses there are amazing. We had a couple that went out of their way to look after Ivy. But that was more a testament to the individuals themselves than any sort of organizational standard set from the top, down. It was up to us, the family, to convince the doctors and charge nurse to look into the defibrillator. They told us (without an evaluation from a neurologist) that Ivy's jolting was neurological. If Elle and Frank hadn't insisted they rule out the defibrillator as a cause of the jolts, we would have never discovered the problem.
The staff at the ICU have taken more time to observe Ivy, and physical therapy has been more willing to push her, yielding tremendous results! (More on this later) They feel she is on the cusp of qualifying for an acute care facility. They're working hard to ensure she doesn't have to return to "Totally Kids" or any other sub-acute facility. She's now seen a neurologist and a cardiologist for the first time since she left French. At this point, her ICU transfer seems to be more of a lateral step, than a step backward.

Sending love from Santa Cruz

Ivy,

Since we can't be down there to actually see you - thanks to Casey - we can check your progress anytime, on your blog. (Technology just amazes me.)

I can't tell you how ecstatic we were when your mom called to say that you were finally awake, smiling and laughing. I'm not one to pray much, but I said more prayers for you in two weeks than I ever have in my whole life! We just knew deep down that they were all wrong, and that we would see your beautiful smiling face soon.

We are hoping and (still) praying that every day gets better and easier for you. Now you can't stay there too long because you have way too many things you want to do, but remember to take it slow too.

You let us know when you are ready for some estate grown coffee and we will be sure to get it to you. And know that we're thinking about you every day!

Love from Deb & Jes & the bats

Where My Dawgs?

Marco caught this short clip on his phone yesterday.  The video quality is dodgy at best, but you can make out Ivy opening her hand to give Marco "five", then clenching a fist for a "pound". Ivy spends much of the day in a foggy, agitated state.  Apparently rewiring the brain is a painful and confusing process. The agony she experiences is strangely, a sign of tremendous progress and is something she will likely have no memory of.  However, it's difficult to witness someone you love in such a helpless state of despair.  Thankfully Ivy gives us these brief moments of lucidity.  Her exhausted smile is a tiny hint of what's to come.

Where's Ivy?

...she came into my office only wanting to know,
"Where's Ivy?"
I didn't know what to say,
"she's on an adventure with no ETA"
"she's in LA, but not sure how long she'll stay"
"oh she's fine, she'll be back soon"
I just couldn't lie to the little girl you'd carried over the moon.
When she couldn't face her friends
and her mom didn't understand and she couldn't go to class,
I found YOU
and you two just
sat on the grass.
She'll never forget the truth you shared,
the wisdom beyond your years
and how you accepted all her fears.
YOU made it ok for her to be her, you've done that for all of us Ivy
I know this for sure.
she looked in my eyes and saw the truth...
"Ivy's hurt and I don't really know when she'll be back."
I saw her heart leap as her body went slack.
What can we do to help Ivy find her way?
she'd want us to protest, to sit in, to send letters, to blog
she'd make an impact, a loving path out of the fog
so we must gather our courage and let our collective soul sing
each individual voice made stronger by the other will bring
the answer to the question we've all known from the start
Where's Ivy?
she's here
she's here in my heart.

WWID

WWID

What would Ivy do?
A simple, processed question
driven by the mind and spirit
of the person in quest

Definition: Ivy: An earnest
infection of love and compassion
flowing from one being into the next
human or animal, constant stream
now and forever more

It's not just a question
but a way of life.
stand tall and charge
free and proud
Live!

A life of grace and elegance
opening and revealing a hidden path
holding unimaginable prosperity
that of happyness in seas of joy!

What would Ivy do?
a simple, yet so obvious question
H20, like water
just simply aquatic

Ask and receive
a theory
Scratch!
knowledge in bases of all known fact

Perfection,
hard to find yet so close
open your eyes and smell the coffee
free your mind
become a better you
and ask
What Would IVY Do!

Hi Ivy,

Grace and I are thinking of you daily, and pulling for your speedy recovery. I want to let you and your family know that although we have not known you for long nor spent a lot of time with you, that you are the kind of person that touches other's hearts and souls upon a minute's time. It only takes one meeting with you to recognize the beauty and strength of your spirit. And it is that beauty and strength that will get you through this ordeal -- along with the implacable and endless love of your family and friends. Bless you sweet girl and blue streaked hugs and kisses to your mom, dad, grandma, uncle, aunt and everyone else who is watching over you:-)

Love,
Kelly & Grace

Isolation

Since her arrival at Totally Kids one week ago, Ivy has been upset and confused much of the time. I don't think it's due to anything the facility is doing wrong, but it is a noisy place. She shares a room with two other patients, there are babies across the hall, devices beeping, staff talking, visitors, etc. It makes for a difficult environment to rest in. With this in mind, Melinda requested that Ivy be moved into the isolation room for a few days to see if it would calm her down. The staff, having observed Ivy in such distress thought it was a good idea, so they moved her into a private room. The first day, Thursday, she was already sleeping for longer durations and clearly less agitated. Yesterday, saw even less discomfort. The physical therapists have been concerned about the tension in her arms. When she gets frustrated, she flexes her arms really tightly. If she does this too much the muscles in the arms can contract. The shortening of these muscles can cause the arms to remain in a permanently bent position, so we've been working hard to keep her arms extended. Yesterday though, her arms were relaxed and stayed that way all day. Ivy has been smiling again for the first time in a week. The new room is much cooler, which suits her as she's been a sweater since she was a baby. They also resumed giving her Ativan, an anti-anxiety med on Friday, which surely contributed to her relaxed state. Some on the staff who have seen this improvement are working to keep Ivy in the private room, but it will be difficult to justify to other families why Ivy deserves it more than their child. If she does have to go back, hopefully the rest she's had over the past couple days will help her settle into the other room.

Wobbly Wings

"When the time is right, the cocooned soul begins to emerge. Waiting turns golden. Newness unfurls. It's a time of pure, unmitigated wonder. Yet as we enter the passage of emergence, we need to remember that new life comes slowly, awkwardly, on wobbly wings."
~Sue Monk Kidd~
Ivy, you WILL emerge as the most beautiful butterfly, soaring higher and stronger than ever, more creative and determined than before and we continue to uphold you in prayer and support.
Hugs,
Candy and Dick

A page from Ivy's MySpace

I was looking at Ivy's MySpace page and I wanted to share with those of you who haven't seen it, a passage that she has on it.

“As you see, within our bodies each of us has the elements needed to produce phosphorus. And let me tell you something I’ve never told a soul. My grandmother had a very interesting theory; she said that…. …each of us is born with a box of matches inside us but we can’t strike them all by ourselves; just as in the experiment, we need oxygen and a candle to help. In this case, the oxygen, for example, would come from the breath of the person you love; the candle could be any kind of food, music, caress, word, or sound that engenders the explosion that lights one of the matches. For a moment we are dazzled by an intense emotion. A pleasant warmth grows within us, fading slowly as time goes by, until a new explosion comes along to revive it. Each person has to discover what will set off those explosions in order to live, since the combustion that occurs when one of them is ignited is what nourishes the soul. That fire, in short, is its food. If one doesn’t find out in time what will set off these explosions, the box of matches dampens, and not a single match will ever be lighted…If this happens, the soul flees from the body and goes to wander among the deepest shades, trying in vain to find food to nourish itself, unaware that only the body it left behind, cold and defenseless, is capable of providing that food.” Like Water for Chocolate (115-16)

Ivy, you are the oxygen for so many of us. I can't wait until you come back to warm my life up again.

Dear Ivy, (and Melinda)
Sorry, I've taken so long to post something. I check "Ivy's corner" every day to monitor your progress though.

I have been praying every day for your speedy recovery and also for Melinda and the rest of the family that they will stay strong during the long road ahead.
I have no doubt that you will recover completely Ivy, because you have lots to do and have lots of plans for your life.

One thing I remember..., you said on your 18th birthday you were going to go out on a boat with Green Peace and sail between a Whale and a Whaling ship. I'm sure you'll be telling those whaler where to go! ....Of course Melinda wasn't too thrilled about that idea. :)
So you've got a little over a year till your 18th birthday but I know by then you'll be looking back on this experience as just a detour in your well planned out life.

I think about you everyday and have asked lots of friends to pray for your recovery also. When I tell them what kind of person you are, they are totally amazed that you are only 16 years old.

I'm sending you all my love and lots of positive vibes,

Karen Moreno (fellow Bat rehabber in Santa Cruz)